Walk a Mile in My Shoes
Gonna change directions here today as the death of Whitney Houston coincides with something I am seeing more and more in the disability community.
It doesn’t matter whether or not you like Whitney Houston. What I am disappointed to see is some of the comments and “hatin’ on” this artist since her death. I actually saw on one person’s Facebook that drug addicts and alcoholics get what they deserve. “Someone with so much talent shouldn’t have wasted it”
Wow. I mean REALLY?
Unless you were thrust into fame and fortune at a relatively young age…
Unless you had to deal with the media on a daily basis, giving up any hope of privacy…
Unless you married for love and were crushed by disappointment…
Unless you raised a child as best you could in the backdrop of an industry that can be unforgiving…
Unless you developed an addiction because of life’s crushing problems and entered rehab while the whole world knew it…
Unless you made mistakes and fell back into bad habits – all while the whole world watched…
… then keep your mouth shut about Whitney Houston.
Why Does This Upset Me? Why Should it Upset YOU?
Anytime people begin to criticize and judge someone else a change takes place. Amnesia.
I rarely hear someone criticize and judge someone who is just like THEM. It usually happens when someone is different than you are. Criticizing is easy when we don’t walk in that person’s shoes. Judging is a simple task when we cannot hope to understand what really caused someone to do something when they are different than we are. We forget all the times we have been hurt for being judged and criticized by people who do not understand our own choices in life.
Wanna get me ticked off? Criticize and judge someone who chose to mitigate their disability with a service dog when you don’t live with a disability. Sometimes even others within the disability community may scratch their head and wonder why a person would choose a service dog when “they have the same disability you do”. What they may not know is that there ARE various differences between your disabilities. Your lives may be different. They may have 24/7 help that you do not have access to in your own life. Why don’t we celebrate “whatever works”?
In the hearing loss community, I know people who criticize people who don’t allow “nature to take its course” and embrace their deafness. To some, if you do not learn ASL then you are shunning a community that could be your family. For others who have accepted technology and/or surgery to stay connected to the hearing world, they may criticize those who have learned ASL for various reasons – personal reasons! I know people who criticize other people’s choices about hearing aids or cochlear implants. Why are we prone to criticize anyone who makes a different choice than what we have made for ourselves?
I think perhaps it is a form of self-protection. We may somehow feel that if someone who is very similar to us chose another path, that their choice may mean that our own path was a wrong one. It may be a form of defensiveness. If we see someone successful at living life with a disability, we may feel the need to criticize because we still have some problems with our own disability. If we see someone floundering at living life with a disability – and they chose another path? Many point and say, “I told you so”.
We could all learn to be more compassionate. We could all learn to listen more and keep our mouths shut.
“When you judge another, you do not define them, you define yourself.” -
Wayne Dyer
“If you judge people, you have no time to love them.” -
Mother Teresa
What May Happen if You Reserve Judgment
If you can keep your opinions to yourself, you may just make some discoveries:
You didn’t understand why they did what they did until you got to know them better.
You misunderstood their choice
After learning more about the person, you actually agree with their choice.
After time you find that you still would have done it differently yourself, but it seems to work for them.
If you can keep your negative opinions to yourself and instead pray for and encourage that person, you may discover a…
FRIEND who has the same taste in shoes!
Denise Portis
© 2012 Personal Hearing Loss Journal
February 13, 2012 Posted by hearingelmo | assistance dogs, cochlear implant, cochlear implants, deafness, disability, dog related, hearing loss, invisible disability, invisible illness, service dogs, working dogs | ASL, assistance dog, cochlear implant, deafness, disability, hearing loss, invisible illness, service dog | 4 Comments
My Goals? Stop Apologizing…
I find it a little hard to believe it is 2012. Normally, the New Year doesn’t sneak up on me. However, this year it certainly did just that. In the past, I’m almost obsessive-compulsive about planning and organizing my resolutions for the New Year. I suppose that I haven’t allowed myself to obsess about it this year, points to the fact that I continue to change and evolve as I age. I think change is important and hope that I will always grow, mature, and change from one year to the next.
Sometimes though? Sometimes I see things in myself that I need to change because they are negative. In my reflection of 2011, I discovered a real negative that I really want to work on in 2012. Introspection did not really help me discover WHY I have developed this bad habit, but I can make some educated guesses.
I apologize. I apologize a great deal. I apologize for things that are not my fault. Some reasons I may do this?
1. I feel as if it will keep others from feeling the blame or reacting in a defensive way.
2. I default to shouldering the blame for most things.
3. I hope to diffuse any uncomfortable thoughts or reactions by others.
4. I hope to garner apologies and acceptance of responsibility by others by my own example.
5. HABIT
Please don’t misunderstand me. I believe that people should accept responsibility and offer apologies when they are warranted. However, I have developed a habit of apologizing for things that are not my responsibility. Sometimes when I say “I’m sorry”, it is simply a matter of miscommunication. I need to say something… but do so in a way it more accurately communicates my real meaning.
An example: “I’m sorry you misunderstood me”.
A better response would be, “I believe I have been misunderstood. May I clarify my meaning and intent?”
As a person with hearing loss I even respond with a “sorry” when I missed something. Example: “I’m sorry. I didn’t catch that”. It may very well be that it is no one’s FAULT that I missed it. After all… I am a late-deafened adult. Yes, sometimes folks may cover their mouth with their hand, or mumble. When that happens it is better to say, “I didn’t catch that. Could you repeat it please?” – or – “You were covering your mouth and I didn’t catch that. Will you repeat it please?” I’m going to try to stop myself before I respond with a habitual “I’m sorry. I didn’t catch that”.
It’s My Choice to Mitigate My Disabilities with a Service Dog
Recently, I “replied all” to an email in which a group of employees were nailing down details about when to meet for a book group. We are reading “Storm” by George R. Stewart. I actually typed out, “I apologize in advance that I will have my service dog with me as she is with me 24/7″. I sat and looked at that sentence for a minute and thought to myself, “WHAT IN THE WORLD?”
I deleted that sentence and re-typed, “Just a heads up so that no one is startled, I will have my service dog with me as she is with me 24/7″. I re-read and re-thought that sentence for several minutes. I like to give people I’ve never met before heads-up about Chloe, but it isn’t required. However, some people ARE afraid of dogs or have allergies. I like to let people know in advance when I can.
When I interviewed at the local community college, before hanging up the phone I let the person know that I would have my service dog with me at the interview. When I arrived to meet with the panel of people interviewing that day, the director let me know that he was glad I told him about Chloe. He normally has his dog with him at work during the summer, and he didn’t want his dog to interfere with my working dog.
Sometimes it cannot be helped. I arrive and people are surprised (or dismayed) that I have a service dog with me. In the past, I have intercepted looks and stepped forward to apologize that I have Chloe with me. I’m not sure why I felt compelled to do this. I’m NOT sorry I have Chloe. She has given me the independence and confidence I needed to follow my dreams! Yet, I often felt as if I needed to apologize for her presence.
When someone asks if they can pet Chloe, I would automatically say, “I’m sorry. She’s a working dog and cannot be pet while she is in vest”. A better response that I’m trying to remember to say is, “She’s a working dog and cannot be distracted right now. Thank you for asking permission though!”
I realize that many people use the “I’m sorry” phrase without thinking about the ramifications of the meaning. To many it is simply a way to break the ice, or begin communicating a difficult idea. For me, I believe that the overuse of the phrase has only served to weaken my own self-esteem and even development as a confident adult with a disability. Please understand that I am talking about ME – and how being overly zealous with apologizing has inadvertently affected ME in a negative way. You will never hear me correct YOU if you choose to use this phrase.
I believe in giving heartfelt apologies when they are needed. In the right circumstances, it conveys the desire to make right a wrong and to restore a good relationship with another person. One of my favorite books is “The Five Languages of Apology” by Chapman and Thomas. I believe in caring about our fellow man and to learn to apologize in such a way it restores good communication and healthy relationships.
It’s no one’s fault I do not hear well. There is no one to blame that I stumble around on rainy days nor am able to retrieve things from the floor. You may be surprised to learn that I wouldn’t change anything about me. Sure… it’s taken a long time for me to accept who I am and to “like me” just the way I am! I do want to correctly communicate my heart, mind, and intent to others. I believe I apologize in far too many circumstances. I want to accurately relay information without demeaning or demoralizing myself.
You may be thinking “poTAtoes” – “po-TAH-toes”. What is the difference? For me… this is something I choose to work on this year. I want to better communicate with others without taking the blame for things that cannot be helped.
In October I was at a training class at Fidos For Freedom in Laurel, Maryland. One of my least favorite exercises is the “Meet and Greet”. I hate it, yet know it is one of those necessary (evil) tasks that I must learn to accomplish with an assistance dog along side of me. Reality check? I will have to communicate with others in a group when there is background noise. It is very difficult for those of us with hearing loss to do this exercise. I have to remember to turn my t-coil off on both cochlear implant and hearing aid. Thankfully, our training room is looped and I hear the trainer very well when commands are given. However, I have to turn these OFF in order to hear a group of people in the “Meet and Greet”. We introduce ourselves and give a little information about our dogs to new people. To folks we know well we simply “catch up”. Our dogs are suppose to remain in a safe place (sit or stay) and we learn to communicate while also keeping an eye on our partners. When you also speech read, it can be very difficult to watch faces while also keeping an eye on your dog. At this particular training, Chloe was in a down/stay for the inevitable “Meet and Greet”. Some of these dogs Chloe has known for a long time. Some of them are newer puppies recently introduced to the training floor to eventually be matched with a client. I spotted Chloe stretching in her down/stay with tail all a-wag and kisses galore for another dog in a down/stay. I corrected her and then realized I missed what the fellow client said.
“I’m sorry. I missed that”, I said with exasperation.
The other client didn’t hesitate and said, “Don’t be sorry. I don’t apologize for weaving around with both a cane and a dog!”
It hit me that I was implying my inability to hear well in this environment could be changed. It is what it is. I do NOT hear well in “Meet and Greets”. It is not anyone’s fault that I do not. No apologies are necessary. I’m learning to ask for repeats without apologizing.
I wish you success in planning your own New Year’s resolutions and goals. I’m keeping it simple this year. Happy New Year and welcome 2012!
Denise Portis
© 2012 Personal Hearing Loss Journal
January 2, 2012 Posted by hearingelmo | Challenge, dog related, cochlear implant, hearing loss, service dogs, deafness, assistance dogs, hearing assistance dogs, cochlear implants, Fidos For Freedom, working dogs, Meniere's disease, vertigo, disability | hearing loss, deafness, service dogs, Fidos For Freedom, late-deafened, Meniere's disease | 3 Comments
Entitlement
When you think of “entitlement”, do you picture someone with their arms crossed and a demanding attitude? Do you associate negative thoughts with the word? I have heard the word “entitlement” discussed at length in various groups lately. Parents may bemoan the fact that “kids today have a sense of entitlement that promotes a feeling of justification for all they do and all they DESERVE“. My husband and I even “shake our heads” at our own kids from time to time. Don’t get me wrong… our kids are TERRIFIC. They are well-adjusted, do not use drugs or drink alcohol, their language is acceptable, they make good grades, they are responsible and willingly reach out to others. But sometimes? Sometimes they act as if they deserve certain things even before earning the right to have that luxury, trust, or understanding. Thankfully, we can simply remind them about the blessings they have and use a comparison or two between their own lives and the lives of some of their peers and they are quick to apologize for their previous attitude.
Teachers confess that students in classrooms across the country are morphing into groups of individuals who demand respect and favors they have not earned. Elayne Clift (2011) said, “Whether it’s rude behavior, lack of intellectual rigor, or both, we are all struggling with the same frightening decline in student performance and academic standards at institutions of higher learning (para. 6)… when teachers refuse to lower standards, those students seem to resort to a new code of conduct that includes acted-out rage, lack of respect, and blame”(para. 8). From what I understand, this attitude is reaching epidemic proportions in classrooms. Thankfully, I have not experienced this in my own classrooms yet. I do, however, believe it CAN be a problem and is certainly happening in many schools. Parents and caregivers may unintentionally (or with very real intent) foster and promote this attitude in their children.
What about “Occupy… ” a city near you movement? I’ve listened to some of my peers argue that those camping out and “occupying” locations in cities across America, are individuals trying to make a point about those in power and wealth, yet harbor a sense of entitlement.
I’m not here to debate any of these issues. Instead, I wanted to point out that a sense of entitlement is alive and well in the disABILITY community. I support being a positive advocate and for educating individuals as to what their rights are under the ADA. I’m not here to debate these issues, however, and recognize that there are plenty of examples of people with disabilities being misrepresented, mistreated, and unfairly judged.
What is ENTITLEMENT?
Webster’s defines “entitlement” as:
When I first began losing my hearing at the age of 25-years-old, I knew next to nothing about hearing loss and how it can impact a life. I spent the first decade of progressive hearing loss learning about hearing loss in general. I sought support and information about how to better communicate and how to deal with the emotional consequences of an acquired disABILITY. When I developed Meniere’s disease as well, I challenged myself to learn all there is to know about a disease with no cure. As a result, I’ve learned what my own triggers are, what steps I can take to lesson the symptoms experienced, and reduce the severity of flare-ups. I’ve become an advocate for those with hearing loss… especially those who are late-deafened. I support and advocate on behalf of those who use service dogs to mitigate their disABILITY.
I’ve met PLENTY of folks who do the same. This does not mean, however, that I have not met people with hearing loss, Meniere’s disease (or other balance disorder), and people with service dogs who exhibit an attitude of entitlement. Many have taken laws that protect their rights and use them as a weapon of mass destruction. Instead of resting on the assurances these laws were meant to produce in the lives of individuals with disABILITIES, these laws are used to insist on more than what is deserved and intended. Don’t get me wrong! Companies and local and federal government should be compliant with specific criteria the ADA outlines and determines as provisions for equal access. A person with disability should be given any available means and technology at work so as to do their job in such a way they are on equal footing with another who does not have a disABILITY for promotions, raises, and opportunities. My “beef” with people with disABILITIES begins where folks insist everyone else in their life adjust their attitudes to satisfy their fragile egos.
Respect is earned…
Whether you have a disABILITY or NOT… respect is earned. We are not entitled to respect by our fellow man. Let’s face it. There are mean people out there… and mean people SUCK. But we as individuals who live with disABILITIES are going to get a whole lot further if we treat even mean people with – respect.
In the service dog industry mean people can “bring out the mean” in others. I’ve seen it happen time and again, and frankly? It’s happened to ME. Some wise-guy person in “charge” will barrel up into my personal space, put out a hand to physically stop me from entering an establishment with chest puffed out, hand on a hip and a look on their face as if to say, “over my DEAD, lifeless body“. My first reaction? “That can be arranged…“
Nothing gets my back up quicker than a cocky, insolent ignoramus who chooses to invade my personal space as well! Especially since the latter may mean I over-compensate and “fall down go boom“. I know my rights. I have copies of the law. I’ve been trained (thanks to Fidos For Freedom). But I have learned that fighting “fire with fire” only leaves me with singed body parts. Sure, I may gain access, but at what cost?
One of my favorite Bible verses is Proverbs 15:1. I just love Proverbs! You could read one verse a day… strive to learn and apply something from it and be busy a very long time… or close to three years since there are 915 verses to be exact, but I digress (grin). Proverbs 15:1 (ESV) says, “A soft answer turns away wrath, but a harsh word stirs up anger.” Pardon my grammar… but AIN’T THAT THE TRUTH? Nothing takes the “wind out of the sails” of an angry store associate quicker than to be gently confronted with the truth of the law. The law is on our side, after all. Some folks are “deaf” to the truth though and because of preconceived ideas will thumb their nose at the law and insist persons with service dogs STAY OUT. Even if you need to call the police to file a report and insist on your right of entry and service, staying poised and in control should be paramount. When we lose control, it only exacerbates the situation. Worse? It sets up the next person with a service dog to encounter this same store associate with an even BIGGER chip on their shoulder.
Tired of paying the same ticket price as person’s with normal hearing at a theater, only to hear VERY LITTLE? If you want to promote open captioning or rear-window captioning… do so with a positive attitude armed with information about who uses it, what the law says, etc. Marching up to a theater manager with both guns a-blazing… accomplishes very little. When theaters do provide these services and use this available technology, be sure to thank the management. I’ve heard some HoHearies say, “why should I? Folks with normal hearing don’t have to thank the management for being able to hear a movie they paid for!” But is that the point? We are trying to raise awareness and help companies like movie theaters to provide these things so that we all benefit. (Hearing Loop.org has a great article here). We need to earn their respect. Thanking management does a number of things:
1) it reminds them who we are… real people who enjoy attending things like movies.
2) it helps them keep the numbers in perspective… many people use and enjoy captions. These “thank you’s” equal number of tickets sold and helps them remember the big picture…
3) it helps them see we ARE appreciative… not demanding snobs or spoiled people with a sense of entitlement.
A great blog post by Shanna Bartlett Groves on this issue can be viewed here and here.
Are you trying to get your church on board with providing an induction loop for people who use hearing aids and cochlear implants? Is the task difficult because there are not very many this would effect… or perhaps there is ONLY you? You will have an attentive audience and lay the groundwork for actually achieving this freedom to hear in church if you handle it the right way. Do not march up to the deacon board with a self-righteous sense of entitlement. Should they care that ALL may hear and participate in church? Well duh – of course they should! But we need to ask in the right way… with the right attitude. Non-profits have more freedom to say “no”. However, we can help them understand what this may mean for those who utilize t-coils in a way that our churches are eager to spend that little bit of money necessary to put in a virtually hassle-free technology that allows us to hear. If you hurl accusations about their lack of “Christian love” and belittle and chastise them… you will only insure they begin to believe that people with disabilities are demanding folks with a sense of entitlement. You may even need to show them how much you care about this issue. Offer to head up fund-raising for this technology. For many smaller churches, funds may be very limited in what they can provide even if they WANT to do so. (Hearing Loop.org addresses this issue here). I have a friend in another part of the country that finally talked her church into purchasing an induction loop system. She then went straight to the local newspapers and pushed for a story to be done on what this small church was doing to provide equal access for those with hearing loss. Her church ended up getting a great deal of positive publicity… reminding all in the community what churches are suppose to be doing in the first place. (A great blog post by fellow HoHearie, Shanna Bartlett Groves can be viewed here).
Yes. I think knowing our rights and standing up for equality is important. It is the “how” that concerns me. Heaven forbid that the way I handle something negatively influence the NEXT person who has a specific life challenge! We influence the thinking of those in the general public as well…
Several weeks ago I was at Costco picking up bulk items that we insist on purchasing in case the world should end. The carts there are ginormous (hey… it’s a word!), if only to hold the huge packages of paper towels, toilet paper, and bottled water we purchase to save a little money. In the pharmacy section I was busy searching for generic antihistamine. An older couple noticed me, first by spotting Chloe and then by noticing the cochlear implant (after reading her vest). They sidled closer with genuine interest on their faces. The lady said, “That’s one of those bionic things that people use to hear better with, right?“
“Yes,” I replied with no small amusement. Noticing the hearing aids in the ears of the gentleman I added, “I have no regrets about getting one either!” I had to repeat this actually, for he didn’t hear me very well the first time! I started to share a little information about my own hearing loss when the man piped up and said, “Well if God wanted me to hear better than I do now, He wouldn’t have allowed me to lose my hearing.“
Now I could have gotten all feisty about someone questioning my own acceptance of what God has allowed in my life. I felt a little “twinge” even – to set this man straight. But I knew this would help very little where as a gentle response would accomplish much more in the long run. “Really? I look at my cochlear implant as using technology available that HE allowed as a blessing in this day and age in which we live!” The man looked confused as he had not heard me very well, but the woman said, “Honey never mind him. He can’t HEAR. You hear so much better than he does! Where did you get your implant?” … and with that I had the opportunity to plant a seed of hope and to share information that may one day provide better hearing for this (ornery) man. It is, after all, all in the attitude!
What is your attitude as a person with disABILITY? Do you at times behave as if you are entitled? Learn to gauge the reactions of those around you as you share what could be done to help you communicate more effectively. Ask for evaluations of how you handle these situations from people who are close to you. Respect is earned. May I never behave or respond in such a way that another person with disABILITY is judged at the onset to be a person with a sense of entitlement.
Denise Portis
© 2011 Personal Hearing Loss Journal
Clift, E. (March 27, 2011). From Students, a Misplaced Sense of Entitlement. The Chronicle of Higher Education. Retrieved November 14, 2011, from http://chronicle.com/article/Students-Should-Check-Their/126890/
November 14, 2011 Posted by hearingelmo | assistance dogs, deafness, disability, dog related, Fidos For Freedom, hearing assistance dogs, hearing loss, Meniere's, Meniere's disease, working dogs | Fidos For Freedom, hearing assistance dogs, hearing loss, invisible disability, Meniere's disease, service dogs | 2 Comments
30 Things
30 Things About My Invisible Illness You May Not Know:
1. The illness I live with is:
Invisible if I want it to be, but I wear bling and use a service dog so that it is not.
2. I was diagnosed with it in the year:
1993
3. But I had symptoms since:
I was 6 years old after a car accident.
4. The biggest adjustment I’ve had to make is:
Learning to hear with a cochlear implant and learning how to adjust on days my Meniere’s disease symptoms have me wobbling around with poor balance.
5. Most people assume:
My cochlear implant has “fixed me”.
6. The hardest part about mornings are:
Not being able to hit “snooze” on my alarm clock since that happens to be my service dog, Chloe. When the alarm goes off, she kisses me awake and there is no going back to sleep. The dog is definitely a “morning dog”.
7. My favorite medical TV show is:
Not really a medical show but I do like Dr. Phil. He’s a “reality therapist” and I think everyone who has an invisible illness needs to have a healthy dose of reality!
8. A gadget I couldn’t live without is:
FM Clipboard for classes.
9. The hardest part about nights are:
Trying to ignore the tinnitus that comes roaring into play after removing my cochlear implant.
10. Each day I take __ pills & vitamins. (No comments, please)
1 prescription (blood pressure) and 9 different vitamins – one of which is Manganese. Studies have shown that people with Meniere’s disease may have a Manganese deficiency.
11. Regarding alternative treatments I:
Have tried numerous ones including acupuncture, chiropractor, and vitamins.
12. If I had to choose between an invisible illness or visible I would choose:
Visible – no question. This is why I try to make my invisible illness – VISIBLE.
13. Regarding working and career:
I am proud that I am able to work having made a number of adjustments and having chosen to be partnered with an assistance dog.
14. People would be surprised to know:
That I dread group activities because I don’t hear as well as they think I do.
15. The hardest thing to accept about my new reality has been:
That I must sometimes choose not to do things I once enjoyed because of my symptoms. For example: If there is a movie I wanted to see that is coming out, but the weather is bad and my Meniere’s disease has flared up, I cannot go and have to put it off.
16. Something I never thought I could do with my illness that I did was:
Go back to school and finish my MS.
17. The commercials about my illness:
There are none. I’ve never seen a late-deafened/cochlear implant commercial, nor a commercial about Meniere’s disease.
18. Something I really miss doing since I was diagnosed is:
Listening to music.
19. It was really hard to have to give up:
Friends who couldn’t cope with the new me accompanied by a service dog.
20. A new hobby I have taken up since my diagnosis is:
Blogging/writing
21. If I could have one day of feeling normal again I would:
Go to an amusement park and ride every roller coaster there!
22. My illness has taught me:
That the disability community is live and well and fully utilize the Internet to connect, support, share information and to be proactive.
23. Want to know a secret? One thing people say that gets under my skin is:
“Nevermind”. If you aren’t willing to repeat it for someone who hears differently are you not behaving as if it doesn’t matter to THEM?
24. But I love it when people:
Include me.
25. My favorite motto, scripture, quote that gets me through tough times is:
Helen Keller: “Blindness separates us from things but deafness separates us from people. “
26. When someone is diagnosed I’d like to tell them:
Email me. Ask questions. I want to help!
27. Something that has surprised me about living with an illness is:
How family members who once knew you “when” are not willing to learn about the new you.
28. The nicest thing someone did for me when I wasn’t feeling well was:
Email me and ask how I was doing.
29. I’m involved with Invisible Illness Week because:
Many illnesses and disabilities are invisible. I want to raise awareness.
30. The fact that you read this list makes me feel:
Appreciative that you care enough to learn more!
Denise Portis
© 2011 Personal Hearing Loss Journal
September 6, 2011 Posted by hearingelmo | assistance dogs, chronic disease, cochlear implant, cochlear implants, deafness, disability, dog related, hearing loss, invisible disability, Meniere's disease, working dogs | cochlear implant, hearing loss, invisible illness, Meniere's disease | 1 Comment
“Tag” You’re IT
Chloe and I were recently in a Wal-mart shopping. In the household cleaning section, one doesn’t expect to run into a child. Among the 4 or 5 other shoppers and carts stood a 5 or 6-year-old little girl. I don’t know how she ditched mom, but she was obviously unsupervised. She was about 20 feet away when she first caught sight of us and slowly made her way down the isle towards us. Inwardly I cringed… for I didn’t really feel like asking her not to pet Chloe. Instead she got close enough and looked at Chloe’s vest (although I’m not sure she could even read), and then at the side of my head where my cochlear implant and BLING sparkle for all the world to see!
She smiled at me and said, “This is a WORKING DOG”.
I replied (with some surprise), “You are EXACTLY right! Chloe is a working dog”.
Unsure of what communication might follow that exchange, she smiled impishly up at me… reached over with her index finger an POKED me while exclaiming, “TAG! You’re IT”. With a squeal she was gone and around the corner with pony-tails flying behind her.
Service Dogs and Play
Chloe’s tail started wagging and she looked up at me with an expectant, “Yeah! Let’s go!”
I just grinned at her and caught sight of a lady about 3 yards from us just grinning from ear-to-ear, having seen the whole thing. I smiled back, calmly walked by her and just as I was passing her – reached out and poked her while saying, “Now YOU’RE it…” She burst out laughing and we went on our way.
I am asked occasionally if Chloe is ever allowed to play. Most recently this came up at a DEMO we did for the Department of Disabilities for the state of Maryland. I think people love the idea of working dogs, but often wonder if the dog is ever allowed to be “just a dog”. We always assure people that our dogs have plenty of opportunities to rest, play, and just be a dog. They are frequently rewarded throughout the day with treats, praise, and physical touch. Walmart is not the BEST place to induce Chloe to play, so I opted out of the game of “tag”… but I can assure you that Chloe is allowed to play with our family dog, and with family members very often.
All Work and No Play
Just like people, dogs need down time. Especially working dogs IMHO. But we could learn a few things from our furry partners. Chloe often naps when waiting in line at a busy cash register, or if we are traveling by Metro, airplane, or even the family car. She knows when to rest and get some shut eye. She also knows when to play and enjoy a major tail-wagging romp! I try to remember to take “5″ and rest when I can. I try to get 8 solid hours of sleep each night because I actually hear better, and walk more steady if I make sure a good night’s rest is priority.
Perhaps we should all play tag from time to time. Hey! It is good exercise, and I’ve not met anyone yet who didn’t smile after being tagged!
Denise Portis
© 2011 Personal Hearing Loss Journal
June 16, 2011 Posted by hearingelmo | assistance dogs, disability, dog related, Fidos For Freedom, hearing assistance dogs, hearing loss, Meniere's disease, service dogs, vertigo, working dogs | Fidos For Freedom, hearing assistance dogs, hearing loss, service dogs | 1 Comment
Idiot Lights
Don’t you love “idiot lights”? And if you know me, you know that I pay attention to them. (Gulp. Does that make me an idiot?)
I’m one of those people who drives 64 MPH in a 65 MPH zone. I always stop on red even if it is 2 A.M. and no one is around.
Needless to say since one of our car’s “idiot lights” has been telling us for 3 months that the oil needed changed, I’ve been bugging my husband to take the car to get the oil changed. The fact that the “Jiffy Lube” sticker on the windshield ALSO said the oil should have been changed at the end of MARCH, only further compelled me to NAG. His insistence that the manufacturer’s guidelines and the lube center’s guidelines differ, does not instill a lot of confidence in me. After all… the car’s “idiot lights” told me the oil needed changed as much as that sticker on the windshield! You see? My husband is PURE GENIUS when it comes to computers. He can do a number of “handy man” things around the house thanks to having worked at Home Depot while in college. But cars? Nope. I’ll just reiterate that his stating “not needed” – failed to inspire confidence in me!
According to him, the sticker always indicated changing the oil much sooner than needed. Instead, follow the manufacturer’s guidelines. How about those “idiot lights” though?
“Everyone knows those things rarely work right. You have to get them reset after getting your oil changed AT the car dealership. I don’t ever go there for oil changes!” he replied.
Evidently (according to hubby) “LOW FUEL” actually means you can drive another 100 miles. “CHECK ENGINE” may very well be an irregularity that has to be re-set occasionally and is often reported as a problem with the model. “LOW TIRE” means you are parked at an incline and the car “thinks” it has a low tire. Sigh.
If People Had Idiot Lights
Wouldn’t it be grand if PEOPLE had idiot lights? You could meet someone for the first time and know some things without any words exchanged. You’d see a flashing:
Needs Work
Snores Loudly
Back Stabber
Yup… it would make life a little easier. We would know what to expect of a person before ever expending any emotional energy to get to know them! EXCEPT… my husband insists those idiot lights aren’t accurate. So that could mean that the little warnings we get about people we meet may be false.
The reality may be:
Works WELL
SINGS loudly
And Back SCRATCHER
If Dogs Had Idiot Lights
How about if working dogs in training had idiot lights? It might help trainers determine who would be best matched with particular dogs. It might help puppy raisers find out about the personality of the puppy they are raising to be a working dog. Perhaps a dog in training would have idiot lights such as:
Stays Calm
Very Instinctive
Easily Potty-trained
And Chloe’s may have been:
Ah… but remember? The idiot lights are not accurate. After all, trainers tell me Chloe was an incorrigible “hard-to-train” pup. But she is a hard-working, completely engaged, working adult dog. Thankfully, I can manage the occasional unfeminine “toots”.
Idiot Lights and First Impressions
Just as idiot lights for vehicles seem to be more bother than help, rarely providing accurate feedback, so too may “first impressions” fail us. People who come across as prideful, pompous, and bossy may actually be insecure. Controlling people may get on your nerves, but they often are the ones who can easily make decisions and get things done. I’m not saying this can’t go wrong. We would not see abusive relationships if it never went wrong.
What I am beginning to realize in this game of “life”, is that first impressions are often wrong. A quiet, reserved individual may actually make a warm, loyal friend if you work a little harder to get to know them. A loud and obnoxious know-it-all may actually have some insecurities and may thrive in a relationship that allows them to not have to work so hard at being perfect.
I’m all for boundaries. One of my favorite books is “Safe People: How to Find Relationships that are Good for You and Avoid Those that Aren’t” by Henry Cloud and John Townsend. However, we cannot allow our first impressions to “warn us off” people permanently. I think boundaries are set up AFTER we really get to know someone and identify they are not a “safe” friend or family member. But first impressions? Leave your brick and mortar at the door when you first begin to get to know someone. Sure, you may get some vibes that have you treading carefully as you work with a person or attend small group with a person. But how many of our relationships would we NOT have if people relied solely on first impressions? I think of the first impression others may see in my own life:
“I thought you were so stuck up when I first met you but eventually learned you could not hear in crowds”.
“Because of your BLING and service dog it was obvious you had some disability of some sort. In getting to know you, I often forget you are deaf. You are as normal as anyone else!”
“When you first asked for the main points of the meeting to be emailed to you I thought that you were basically asking for special privileges. Little did I know after receiving the “recap email” sent to the entire department that I missed a lot of important notes from the meeting too. This step helps ALL of us.”
If first impressions are a type of “idiot light”, we should remember that they are often wrong. Extend the benefit of the doubt to people who rub you the wrong way when you first meet them. In time you will discover if you had good intuition and need to erect some safe boundaries to interact with someone. However, you may learn that it was really a smoke screen that hid a wonderful person who simply had trouble letting the real “soul” show.
—————
I was so thrilled when my husband brought the car back this past week and said all the fluid levels were checked, oil changed, filters changed, and tire pressure checked. However, as I Headed to work on Thursday I happened to look down at the dash and lights. I grimaced as I saw the “CHANGE OIL” scroll across the bottom of the display. I tore my gaze back up to the road and mirrors and began to chant, “Idiot lights are inaccurate. Idiot lights are inaccurate…”
Denise Portis
© 2011 Personal Hearing Loss Journal
May 10, 2011 Posted by hearingelmo | assistance dogs, deafness, dog related, hearing assistance dogs, hearing loss, service dogs, working dogs | assistance dogs, first impressions, hearing loss, idiot lights, service dogs | 2 Comments
Frost Heave
picture from blog post at: Herding Grasshoppers
I recently read a post from one of my favorite bloggers. I love Herding Grasshoppers and NOT just because her son is hard-of-hearing. She is witty, adventurous and “real”. I rarely walk away form reading one of her posts without a smile on my face.
She recently posted about “Needle Ice” and frost heave. I was very intrigued. I’ve seen frost heave when walking trails before, but wasn’t really aware of what it was I was looking at. After reading her post I immediately went to look for more information about this phenomena. Frost heave occurs when moisture-retaining soils freeze in cold temperatures. As moisture sinks into the ground the freezing temperatures cause the water to freeze into ice. When water freezes… it expands and creates pressure. The soil presses up and may expose the roots of plants and has been also known to bring rocks and pebbles to the surface. Take a close look at the picture. The ice crystals have actually brought small rocks and pebbles to the surface. Once this thaws, the rocks and pebbles are left on top of the ground. One would almost think someone had “planted rocks” in an area that may have once been clear of them!
What “Heaves” out of you?
I have given a lot of thought recently about what kind of thoughts and actions are seen in my own life when the going gets “rough“? When my life becomes saturated with a seemingly endless bombardment of trials, problems, set-backs, health problems, and struggles, I am often left pleading with God “PLEASE! Not ONE more thing!” But ya know something? God must know my limits better than I do. Because there have been some difficult times that I have prayed and pleaded “not one more thing – thanks so much“, only to have a blast of cold air on top of my already “saturated life”. Exhaustion, pain, fear, depression and plain ol’ “bad attitudes” may have HEAVED to the surface of my life. These things are usually hidden. Some of the heaving exposes some thoughts and actions that just aren’t pretty. Some of it is just “junk” and “rocks”. The “heave” may expose “roots” as well and leave areas of my life vulnerable.
This past summer, I was having a pretty difficult time. I was doing my best to stave off depression as it is an unwelcome visitor that worms its way into my life at inopportune times. I was to the point of pleading, “Not ONE more thing God – please! Hello? Are you listening?” The next day Chloe was hurt in the park. For whatever reason (as we often will not understand this side of Heaven), God allowed ONE MORE THING. Chloe’s foot took a really long time to heal and I even had fears she would ever be able to work again. Yes, she is special to me because she is my hound dog and “doggie friend”, but she really enables me to be more independent too! What would I do if her foot would not heal? During the months (yes you read that right) that followed a lot of “stuff” heaved out of that pressure and into full view – especially to my family. It wasn’t all pretty. I was cantankerous (a nice way of saying PAIN IN THE BUTT) and aloof. I knuckled down and did the things I HAD to, but did not exert myself to do anything else. I had a major pity party several months long.
But not everything that HEAVES out of our saturation point is bad. Sometimes we discover that in spite of disability – we are very ABLE. You learn pretty early on what you CAN do, and end up doing it really, REALLY well. My saturation points have received an extra dose of FREEZE and heaved up compassion for others, patience, encouragement, and determination. I may stand and look around at the defrosted ground and spy a rock here and there. But sometimes? Sometimes I see beautiful geodes or prisms. I’ve not discovered a diamond yet – but heck. I’m only 44. I’m certain I’ve a great number of frost heaves in my future. Diamonds come with maturity. (If you ask my family – I’m not exactly THERE yet).
Have you experienced difficult times? Things that have happened in a life that already seemed completely saturated with problems and struggles? Don’t fear the weather forecast of overnight “freezing temperatures”. Meteorologists are RARELY accurate! If they happen to actually nail it one time? Welcome the heaving frost crystals to the surface and determine to unearth GOOD THINGS. Prepare your heart in advance to showcase determination, patience, long-suffering, gentleness, kindness, and love.
Experience enough frost heave and you’ll find that the soil of your heart and life is well aerated and primed for Spring.
Denise Portis
© 2011 Personal Hearing Loss Journal
February 8, 2011 Posted by hearingelmo | assistance dogs, Challenge, chronic disease, deafness, dog related, Fidos For Freedom, hearing assistance dogs, hearing loss, Meniere's disease, service dogs, working dogs | assistance dogs, challenges, frost heave, hearing loss, Meniere's disease, service dogs, working dogs | 1 Comment
Random Definitions – Consider the Source
Aren’t definitions funny critters? Oh sure… you can use “Dictionary.com” or Merriam-Websters Collegiate “big enough to cause a hernia” dictionary to look up words. But the funny thing about the English dictionary? Words can mean different things. The words can EVEN mean different things – to different people. Some random definitions I have encountered in the last week include:
Now: To the mother who demanded the trash be emptied, it means immediately. To the 20-year-old son who will get to it eventually, it means sometime today.
D-cup: “What does ‘D-cup’ mean to you?” Response: “Male or female?” Speechless thought: “Wha’… ?”
McDonalds: To the over-extended, ‘I forgot to thaw out the chicken’ parent, it means SUPPER. To the health-conscious, it means ‘heart attack in a bag’.
Snap: Daughter: “Oh snap, I forgot my key!” Mother: snaps fingers and looks quizzically at daughter. Daughter: (raises eyebrows and shoots an exasperated DUH look at mother…)
Normal: To a teenager, it means someone who “fits in”. To a dog, it means it can be eaten. To a person who happens to have a disability, it means “treated like everyone else”.
Yup! You often have to consider the source to understand how people choose to define common words. The word “normal” has cropped up a couple of times in the past several weeks for me.
First occurrence:
Kyersten and I were at Costco looking around and purchasing some bulk items to take back to Virginia for college. A lady did a double-take, looked at Chloe (my assistance dog), looked at my head and kept walking a few steps. However, she immediately stopped and left her cart, pocketbook and items and trotted over to where Kyersten and I stood to say, “Excuse me! Is that a cochlear implant?”
“Yes,” I replied.
“Oh my husband has one of those. How long have you had yours?” she asked with curiosity.
I preceded to tell her a little bit about my own activation 5 years ago and hearing health history. I was trying to keep an eye on her cart (with pocketbook that screamed, “Steal me. Someone steal me” in it), so was a little startled when she interrupted my nervous glances toward her cart to say, “But your speech! It’s so normal!”
In talking with her, it seems her husband was deafened at a young age and was essentially without sound for 27 years before he received his own bilateral implants. He evidently has a noticeable speech impediment. But what is “normal”? I have met late-deafened and congenitally deaf people from all over the United States. “Normal speech”? Some would argue my southern accent is not “normal” for the DC-Metro area. How one person with hearing difficulties speaks, is much like an individual accent. There isn’t anything “abnormal” about it. My son has perfect (selective) hearing, and he has a speech impediment. It is “normal” for him though. How pronounced his own speech difficulties sound, depends on how hard he chooses to enunciate words and regulate his speed. Who determined what “normal speech” was and determined the “yard stick” by which to measure all speech?
At Pearle Vision Center:
A lady and her daughter stopped to admire Chloe who was in a down/stay. “Oh what a beautiful working dog! Are you training her?”
“Oh! No… Chloe graduated 3 years ago. She’s always training, but I’m not her original trainer” I replied.
“Oh! You mean she is YOUR partner?” the surprised woman asked.
“Yes. She’s a hearing/assist and balance assistance dog. I am late-deafened and have Meniere’s disease”, I cheerfully replied.
“Oh wow… you look so n-norm- normal” she stuttered out (since she realized how inappropriate that was as soon as she started saying it!)
I just smiled and she walked away embarrassed.
Normal?
Very likely, this world would be a better place if people didn’t go around labeling others as NORMAL or NOT.
To someone, somewhere… you aren’t “normal” if you choose to define the word as “not like you”!
Denise Portis
© 2011 Personal Hearing Loss Journal
January 25, 2011 Posted by hearingelmo | assistance dogs, cochlear implant, cochlear implants, deafness, dog related, hearing assistance dogs, hearing loss, invisible disability, Meniere's disease, Nucleus Freedom, service dogs, vertigo, working dogs | assistance dogs, hearing loss, invisible disabilities, labels, Meniere's disease | 2 Comments
I’d Never Shave My Legs
You know? If I didn’t think what others thought of me was important… I’d never shave my legs.
I would throw my toothpaste away.
I would toss all of my bras.
After all, I do not do these things because smooth legs, peppermint breath and supported body parts do anything for ME.
I’ve heard folks say, “I don’t care what others think of me”. Oh really? If that were true, you wouldn’t have showered this morning and you’d be standing there in purple sweats;
and a red-checkered flannel shirt;
with one green flip-flop;
and one hiking boot!
Instead, your “outfit” (such as it may be) is color-coordinated to a degree. Your body odor reflects you care about hygiene.
OK. Maybe you are sitting there mentally clarifying that you may care what people SEE when they look at you, but – “I don’t care what people think of me personally”. Oh really? If that were true then when your spouse, teenager, co-worker, roommate, or walking buddy asked you this morning, “How are you?”, you would have responded with something much different than “I’m just great! How are you?”
Instead you would have thrown your hands up and said, “Well this is a POOPY day. My dog got in the trash this morning, my daughter forgot to run the dishwasher, I was running behind because I got up 20 minutes late, we were out of eggs so I had to eat CEREAL (face blanches), and I’m standing here with a wedgie if you MUST KNOW!”
But we don’t respond that way, do we? There are societal “niceties” that we adhere too. We know that, “Hi! How are you?” doesn’t mean that the other person really wants a play-by-play of how your day REALLY was. I don’t think that makes us liars. We are simply individuals that are part of a society that interacts somewhat superficially in our everyday greetings.
Yes – I know! There are some people we are just “straight” with and tell it like it is. But most of the time our interactions with others are not with those specific individuals. These special, specific individuals don’t care if we shave our legs.
Stay Positive, PEOPLE!
Take for example something that happened to me this past week.
I was out shopping and maneuvering cart, assistance dog, and SELF up and down the aisles. A woman noticed Chloe, my assistance dog. She came closer with real intent in her body posture and facial expression. I wasn’t getting really “friendly vibes” from her so instead of pretending to continue to shop so that I could keep an eye on her, I boldly faced her approach and waited to see what would happen. She made her way to my side with determination and pointedly read Chloe’s vest:
She then looked at the side of my head and noted my cochlear implant. She actually took two steps to the side to check out my OTHER ear. By this point… I’ll admit that I was a little intimidated!
She looked me in the eye and said, “So you need this dog yourself?”
Now you have to understand my IRE was already “tickled” and there was a part of me that wanted to respond:
“No, stupid. I bring this well-trained dog into public places because I like the attention. This cochlear implant and hearing aid? All for show, lady. As a matter of fact… (and I’d lean close to offer a conspiratorial whisper)… I. Don’t. Shave. My. Legs.”
But you know what? I care what people think of me. I care… because I care about others who have hearing loss. I care about others who live their lives with assistance dogs and service dogs. I want this ill-informed lady to walk away with a better appreciation for what I can do “in spite of“. So I plaster a semi-genuine smile on my face and gesture towards Chloe…
“Yes, I have a hearing loss and Meniere’s disease. Chloe alerts me to sounds I cannot hear, and picks up things I drop. Because of her, I can be out shopping without anyone with me and I never have to ask for help”.
Her face gets a lightbulb moment kind of look. “Oh I see”. She looks at me. She looks at Chloe. She walks away. I could still sense the disdain coming off of her. But at that point? It simply didn’t matter. I had taken a deep breath and responded in such a way that I remained a POSITIVE advocate for both people with hearing loss and people with working dogs. As she walked away I pinched myself to keep from stopping her to ask if she shaved her legs. I do admit that I leaned down to Chloe and scratched her head to whisper:
“Imagine that Chloe. It’s not even Halloween!” The witch with hairy legs walked away with some positive information about working dog partnerships.
We Need Each Other
I’m reminded time and again how much we need each other. I know a kindred spirit and dog-trainer who drove all the way to Frederick with her roommate who has a service dog to walk around the mall after my “incident” to show solidarity. These same people were all set to travel to Virginia to attend a vigil to protest that Andrew was not going to be allowed to have his service dog in school. Thankfully, the school board reversed their decision.
I know numerous trainers at Fidos For Freedom that spend countless hours training assistance/service dogs, training and instructing people… all without pay. They take dogs into their homes to spend countless hours OF THEIR FREE TIME, honing skills and modifying behavior so that a dog eventually makes an excellent match with a person that needs them. These are NOT people who “don’t have a life” either. They have families, jobs, pets of their own, ministries, hobbies, and goals. These trainers not only do not get paid, they rarely receive any recognition. They don’t do what they do for the recognition though. They do it because they love people, love dogs, and love to be a part of the connection that takes place between these matches.
I have another friend who constantly challenges herself by going back to school in spite of working full-time. She already has multiple degrees but she is constantly looking for ways to better herself so that she can better help others. She is heavily involved in hearing loss support, traumatic brain injury, enjoys wildlife and supporting her local zoo, and is an avid photographer. She has bi-lateral cochlear implants, but you’d never know she had a disability. She doesn’t live like she has one. She, like many others I know, live life in all the ways they are ABLE and don’t focus on the disability. (I love her… can you tell?)
I know people who volunteer and give of their time, resources, and talents to numerous non-profit agencies. Their goal is to serve their fellow man. They want to make a difference. They DO make a difference.
It takes just one BAD example of a person with a disability or special needs to sort of “spoil it” for the rest of us. As for me? I don’t ever want to be that person. I certainly take the opportunity to “belly-ache” to select individuals who know I just need to “vent”. I know – that THEY know – I may belly-ache about an encounter in private, but in public I will put on a brave face. They let me vent… and then hand me a razor.
Yes… we need each other. Don’t ever think that what you do – does not in SOME way reflect on others. As a person of faith I try to be extra careful. After all, I cannot go around “claiming faith” if I live as if I don’t have any at all. If I express that faith is important to me, I need to remember that my words, actions and life reflect how others see Christ.
Denise Portis
© 2011 Personal Hearing Loss Journal
January 7, 2011 Posted by hearingelmo | assistance dogs, cochlear implant, cochlear implants, deafness, dog related, Fidos For Freedom, hearing assistance dogs, hearing loss, invisible disability, Meniere's disease, service dogs, working dogs | assistance dogs, cochlear implant, deafness, Fidos For Freedom, hearing loss, Meniere's disease, service dogs, working dogs | 4 Comments
Yup, I talk to My Dog. Don’t You?
I’ve embarrassed myself a couple of times in Wal-mart recently. I’ve caught the HUGE smiles of people passing by or catch the gleam in their eye as I look up and around. You see? I talk to my dog. It’s not just because she’s an assistance dog either. I talk to all of our dogs. But Chloe is the only one I talk to in the middle of Wal-mart, for obvious reasons.
People have heard me ask, “Chloe do you think the guys will want french-style green beans this week or do you think I can sneak some fresh green beans into the menu?” Chloe cocks her head and wags her tail. For some reason I’m able to make a decision. It’s not that I interpreted her body language to mean, “I’d go with the French-style, Denise”, but it helps to talk to her.
I caught an actual chuckle when I exclaimed to Chloe, “Chloe! Look! Can you believe it? It’s an Elmo Christmas SNOW GLOBE! Hope Santa knows I’ve been very good!” Chloe bumps my hand and wags her tail again. She thinks I’ve been very good.
Paying Attention
You might think I’m crazy. But actually… I’m helping Chloe keep her attention on me. If you look at a dog’s eye-level at Wal-mart, you will see things that aren’t as readily apparent to those who are taller than 3 feet. Stuffed animals, “Roll Back the Prices” price tags that Chloe thinks she really should swipe off the shelf and hand to me… all kinds of tempting things. By talking to Chloe, she pays attention to me. When I have a dizzy moment, I say, “Whoa….” and Chloe knows to take a step out of heel to make sure she can move if I actually fall. It’s important for Chloe to pay attention to me.
That’s why it is really not a great idea for people to “ooo and ahhh” over an assistance dog/service dog in public. You are getting the dog’s attention. They can’t help it. They KNOW they are beautiful/handsome and wonderful. Chloe’s vest actually has a tag on it that says, “Do not distract”. I realize people mean well, but if I’m having a bad balance day AND I don’t hear your “oh what a pretty dog” remark, I could fall just because Chloe wants to go and greet you.
What Distractions Can Do
I had this happen in Best Buy once. I was on my knee, balancing to see something lower, and someone got Chloe’s attention. She broke her heel to stand and WAG at them, and I fell right over. I laid there blinking up at the man whose eyes had widened in horror. “Gee, I’m sorry Miss. I can’t read, obviously”.
“Oh, that’s OK. I just wasn’t prepared”, I replied cheerfully from the FLOOR. I waved his hand away and said, “Actually she needs the brace practice, so no problem”. I had Chloe help me up, and the man again apologized. He even had tears in his eyes. I laid my hand on his arm and said, “Honestly, it’s no big deal. I sprawl at least once a day!” He wandered away unconvinced.
I do understand that seeing a well-behaved, dog identified as a “helper dog” can be really hard to just walk by for those of you who love dogs. I actually do not mind being stopped and asked about Chloe. However, it is really helpful if you talk to ME and not Chloe. Feel free to ask people with assistance dogs if you can pet their dog – because some people do not mind at all. I’m not those “some people” (grin). I will always (pleasantly) say, “I’m sorry she’s working and I’m trying to keep her from being distracted”. Be prepared for some people to say “no, I’m sorry”. They appreciate that you think their dog is “swell”, but it really doesn’t do the dog or the owner any good to constantly allow people to pet them in public. Many people use service dogs for disabilities that are invisible. It may not be easy to pick that up and asking to pet the dog might put the owner at risk.
If we meet someone we know real well, I actually do allow Chloe to say a quick “hello”. She is very good about giving quick kisses and then stepping back into heel. To do so is my choice though. Those who know me well, actually know not to ask on rainy days when they know my balance is going to be really bad. When Chloe sees someone she knows in public (usually folks from our small church, or close friends), she will do better to say a quick “hello”, so that she can get back to work. It is like identifying someone she knows from her “pack”.
Chloe’s Safety
By talking to Chloe in public, I let other people know she is there. Now that I’m completely independent and don’t have to worry about what I’m not hearing or dropping things I can’t pick up, I even head out on really busy shopping days. Not on purpose mind you! I’m not completely nuts! (grin) But I’ve been in a “crush” of people and talked to Chloe non-stop so that people would know she was there.
We made the mistake of going to Hershey’s Chocolate World the weekend after Thanksgiving this year. We go there a lot, but this was the first time it was literally wall-to-wall people. I couldn’t have fallen down if I had wanted too! I was completely surrounded by people! I talked to Chloe non-stop so that people would know she was down there. It’s hard to see someone 3 feet tall! I would even stick out my hand in a real “crush” and say rather loudly, “Excuse me… service dog coming through!” I was so intent on keeping Chloe safe by talking to her and watching where we were going that I mis-placed my daughter. I looked up and could see my husband in the distance, and my 6’3″ son was easy to spot… but where was Kyersten?
My heart was pounding and I held my arm out and just kind of plowed through to the nearest wall. I frantically searched for her little 5’3″ self and could not see her anywhere. I was scared spitless! I reached for my phone to see if I could send an S.O.S. text to her. Just then I felt a hand on my elbow. I whipped my head up and stared right into the smiling eyes of my daughter.
“Kyersten! I lost you!” I managed to sputter out. (It was hard, because I was spitless, remember?)
She rolled her eyes, and gave my shoulder a squeeze. “Mom. I’m 20-years-old. It’s not like I’m lost. If I lose track of you guys I’ll call. You are kind of hard to lose track of” and she gestured down to the red assistance dog complete with holiday jingle bell.
Freedom
You may run into me in a store, restaurant, movie theater, post office, pharmacy or doctor’s office with Chloe. You may HEAR me before you see me. I talk to my dog. But you know something? It’s not ONLY because it helps her pay attention. For you see… Chloe is the reason I’m alone in a store, restaurant, movie theater, post office, pharmacy, or doctor’s office. Before being matched with Chloe, I rarely went out alone. Talking to Chloe is a reminder to me… I’m in public, enjoying life, and yup! I’m talking to my dog. Don’t you?
Denise Portis
© 2010 Personal Hearing Loss Journal
December 13, 2010 Posted by hearingelmo | assistance dogs, deafness, dog related, Fidos For Freedom, hearing assistance dogs, hearing loss, invisible disability, Meniere's disease, service dogs, vertigo, working dogs | 6 Comments
About
If you searched the internet for sound clips of Elmo and other Sesame Street characters, YOU ARE IN THE WRONG PLACE. Elmo is “famous” here for an entirely different reason!
After the activation of my cochlear implant, Elmo was the first “toy” I heard while shopping with my family. I was so excited to hear him, I bought him… and then another… and still another. My family began purchasing Elmo’s for me for every milestone I seemed to reach in “hearing again”.
Much to my surprise, the first Walk4Hearing I participated in had a special mascot on site for the day of our Walk. It was Elmo! I nearly tackled him, much to my family’s embarrassment!
Elmo will always be special to me, and so I have named my blog after that moment in time that is now forever etched in my memory… that moment when I realized I was “Hearing Elmo”!
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