Meniere’s Help

A "modified brace"
A "modified brace"

harpers-ferry-may-07-on-stairs2

Today is a rainy, dreary day. I actually love the rain, because it makes everything so green and keeps me from having to water everything! However, when it’s rainy I do take the extra time to “walk safely”. I’m extra careful on stairs, and I stand up slowly. I don’t do anything in a “hurry” that might move my head’s altitude quickly!

Chloe loves to pick things up for me, so I think when she sees me wake up with a little bit of “weave” to my step, she’s actually looking forward to a day of retrieving “every little thing”. Sometimes I don’t need the gum wrapper, or leaf brought in on the bottom of someone’s tennis shoe, but I thank her and praise her just the same. Actually, it’s probably good she brings me everything, for our Elkhound teenager will eat everything!

Meniere’s is not a disease widely known. Even amongst the hearing loss “crowd”, it is just beginning to get a little more “press”. Here are some of my favorite “Meniere’s helps”:

Hearing Loss Web:  http://www.hearinglossweb.com/Medical/Meniere/mn.htm

NIDCD: http://www.nidcd.nih.gov/health/balance/meniere.asp

The Meniere’s Page:  http://oto2.wustl.edu/men/

Meniere’s Organization:  http://www.menieres.org/

Denise Portis

© 2009 Hearing Loss Journal

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5 thoughts on “Meniere’s Help

  1. Denise,

    Thank you for this informative post! You know I’ve recently been diagnosed with Meniere’s Disease. It’s nice to have all the informative resources in one place! Thank you!

    I’m “weaving” a little bit today, too, on this rainy day. But, I love to hear the rain and see everything greening up and changing color!

    Have a blessed day!

    Laurie

  2. What perfect timing! I just sent a friend to your blog…she just got diagnosed with Meniere’s yesterday…and is very upset. I sent your blog to her in hopes that it will help answer some of her questions!

  3. I’ve already been in touch with her “RedQueen”! We’ve exchanged some emails. I hope I can help to give her some direction. So little was known when I started down this road. If I can help in any way, I certainly want too!

  4. I’m glad you posted this, since I’ve been having trouble getting answers from my doc’s. There were so many “weird” things that I chalked up to “weird”, not knowing they were part of Meneiere’s.
    BTW–You’re incredibly fortunate to have such an outstanding dog, too!

  5. This past May, after suffering through violent vertigo attacks for over 2 years and being treated for the wrong thing, I finally found the right doctor and was properly diagnosed with Meniere’s. I have been treated aggressively with several different treatments and seemed to be responding well to them. In fact, I didn’t have an attack for several months (May through mid-October). However, I recently experienced 2 attacks in the past month – the most recent one being particularly frightening because it came on with absolutely no warning (in fact I was feeling really good that day!) and I had no time to get to a safe place. The only thing I could do was to immediately drop down to my kitchen floor, where I remained until my husband came home from work an hour and a half later. My doctor indicates that this can happen at times with Meniere’s. I am waiting for approval from my insurance company to obtain a Meniett box. I have been confined to my home for the past 3 weeks, too frightened to even walk outside by myself, until someone can accompany me. My doctor has advised me to continue to take these precautions until the Meniette box comes in and I begin (hopefully) to respond to the Meniett box treatment. But, of course, there is no guarantee this treatment will work; and, if it does, it could take another few months; if it doesn’t, the next step is the injections to destroy the nerve (which I am hesitant to do for fear that this disease will progress to my good ear). I’m only 55 years old, I have 3 children and own my own business (which is quickly going under at this point) and to say that this is making me depressed is an understatement. The attacks themselves are bad enough, but I could live with them if I had some quality of life in between. This isolation is a thousand times worse than the attacks. My question is this – can service dogs be trained to alert you in advance that an attack is coming on? If so, how far in advance can they detect the attack? I am desperate to find anything that would enable me to get back out into the world and live! Thank you for taking the time to read this and responding.

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